{"id":1677,"date":"2010-02-22T12:49:00","date_gmt":"2010-02-22T12:49:00","guid":{"rendered":"http:\/\/79.170.44.80\/livingwithkids.co.uk\/a-chance-to-help-very-special-children-and-their-families\/"},"modified":"2014-05-16T13:32:26","modified_gmt":"2014-05-16T13:32:26","slug":"a-chance-to-help-very-special-children-and-their-families","status":"publish","type":"post","link":"https:\/\/www.kidstart.co.uk\/blog\/a-chance-to-help-very-special-children-and-their-families\/","title":{"rendered":"A chance to help very special children and their families"},"content":{"rendered":"One of my friends is the proud mum of a little girl who was born with a rare genetic disorder, and without wishing to embarrass her, I&#8217;m in total awe of\u00a0them both. The way she and her daughter interact is absolutely magical and it does my soul good to see them together.\r\n\r\nI can&#8217;t begin to imagine what it must be like to carry and give birth to a much-longed for and apparently healthy child only to discover something is wrong, so my heart goes out to anyone who has had to cope with this. Last Tuesday&#8217;s incredibly moving BBC1 documentary <a href=\"http:\/\/news.bbc.co.uk\/1\/hi\/health\/8517897.stm\" target=\"_blank\">Having a Baby to Save My Child<\/a>\u00a0revealed the plight of two families affected by rare genetic disorders and their\u00a0extraordinary courage and dignity was utterly humbling. Sadly there are thousands more families across the UK who are also in this situation.\r\n\r\nSunday is <a href=\"http:\/\/www.rarediseaseday.org\/\" target=\"_blank\">Rare Disease Day<\/a>\u00a0&#8211; a chance to show your suppport for those children and their parents coping with rare genetic disorders. If you&#8217;re able to raise funds by a bake sale or anything else I know they&#8217;ll be very gratefully received. You can also donate your KidStart savings to <a href=\"http:\/\/www.gig.org.uk\/\" target=\"_blank\">GIG, the Genetic Interest\u00a0Group charity<\/a>\u00a0 by clicking <a href=\"http:\/\/www.kidstart.co.uk\/Details.aspx?ch=GIG\" target=\"_blank\">here<\/a>.\r\n\r\nThank you for taking the time to read this.\r\n\r\nwritten by Liz Jarvis","protected":false},"excerpt":{"rendered":"A chance to make a difference to those families affected by Rare diseases and genetic disorders","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[4,3503],"tags":[1049,1050,1051,1052],"class_list":["post-1677","post","type-post","status-publish","format-standard","hentry","category-great-family-life-tips","category-parenting-advice-from-parents","tag-genetic-interest-group","tag-kidstart-savings","tag-rare-diseases-day","tag-rcdp"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v24.9 - 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