These families need your support

Feb 28 • Featured, Uncategorized • 940 Views • 2 Comments on These families need your support

Today is Rare Disease Day 2011  which aims to raise awareness of genetic conditions around the world.

Did you know that in the UK, four out of every 100 babies is born with a genetic condition? Almost a third of babies born with a serious genetic condition die in childhood, and another third live with chronic disability.

The Genetic Alliance UK aims to improve the lives of people affected by genetic conditions by ensuring that high quality services and information are available to all who need them. You can find out more about their work here.

You can also donate your KidStart savings to Genetic Alliance UK. Click here to find out how.

written by Liz Jarvis


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2 Responses to These families need your support

  1. divasupermum says:

    its a very vaild point to bring to everyone attention

  2. funmum says:

    A friend of mine has a child with a rare disease and they have really struggled to get help – none of the doctors they see know anything about the condition! I think this is a really worthwhile cause to donate some of your KidStart savings to.


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